How to Decide to Get a Cochlear Implant or Not

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Decide to get a Cochlear Implant or not

How to Decide to Get a Cochlear Implant or Not

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Step 1 of 31

This guide is something I really take to heart. It's from personal experience and talking to others and learning their experiences and thoughts.

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I'm not a doctor. I'm a cochlear implant recipient. I'm not giving advice on the medical side of the issue here. What I want to address is the cultural and emotional sides of the decision.

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I've talked with a number of people who are deaf about the cochlear implant. Mainly with people who have thought about getting a cochlear implant but have questions and concerns about it.

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It's my hope that this guide will reach people who are debating on getting a cochlear implant and/or people who know someone who's pondering this decision. I hope to bring understanding to both sides.

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A common theme is that a person pondering this decision has two opinions pulling on them. On one side their hearing friends and family are encouraging them to get it.

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On the other side their deaf friends and family members are talking them out of getting it.

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Why is this happening? Here's why...

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Hearing people can't imagine why someone would want to continue to be deaf. They can't imagine someone intentionally not wanting to hear voices, music, talk on the phone, etc...

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But think for a moment. How important would music, phone calls and voices be to you if you've never heard them? It's not a very strong argument to make from their point of view (born deaf issue).

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There's also the culture issue. People who are born deaf usually belong to a deaf culture. This means they're acquainted with many other deaf people.

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They have deaf friends, family, teachers, etc... No matter where they go they can meet other deaf people and have this cultural bond. Heavily linked to their language.

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This is not unlike any other cultural group. People from different cultures or nationalities tend to come together.

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I'm sure you've all read stories or seen parts of movies where they take people from one culture...

I'm sure you've all read stories or seen parts of movies where they take people from one culture...

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And force them into another. Change they way they dress, talk and live. I'm not trying to say one is more significant than the other. But to some deaf, this is the same type of threat the cochlear has

And force them into another. Change they way they dress, talk and live. I'm not trying to say one is more significant than the other. But to some deaf, this is the same type of threat the cochlear has

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It's a threat to their culture. Their way of life. Agree or not I hope you can see why some feel threatened by this. Especially knowing the culture is so heavily based on their language.

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My advice to anyone thinking about getting a cochlear implant is to research, research, research. But be careful. Research fact, not opinion. Research present facts not past facts.

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What was true 15 years ago isn't always true today. For example you'd no longer require more surgeries if advances are made to the technology. Upgrades are done on the external sound processor today.

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Make your own decision based on your own research and desires. Don't let anyone talk you into it or out of it. It's your life and you're decision alone.

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Here are some facts based on my own experience. First, all surgeries are serious. There are always risks. Even in getting tonsils removed. Don't take that lightly for a moment!

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Having said that. Getting a cochlear implant is a fairly low risk surgery. It commonly last 3-4 hours and most, myself included, go home the same day as the surgery (out patient).

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You will receive a list of possible things that can go wrong and their percentage of likelihood they'll happen. The highest percentage is about 7%. And if it happens its treatable.

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Meningitis is prevented with a vaccine before surgery which is now mandatory. You cannot get the CI without first getting the vaccine. Mainly children seem to have to worry about this.

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The CI seemed like a miracle to me but its not a "miracle cure". I'm still deaf. I don't have "super hearing". But I can hear speech, music, talk on the phone and hear the rain and thunder.

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They use to have less Chanel's (electrodes) with less sound quality. Hens the use to be true "sounds like robots" no longer applies. With practice voices sound "normal".

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It'll require work on your part. You won't experience an overload of sound you can't handle. At first it'll only be turned up to about 5%. Over the first year the volume will gradually be increased.

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The volume will be set in such a way that no matter how loud a sound is. It can't bring you discomfort. It'll be set to your needs.

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You'll have to learn to hear and identify sounds. You'll have to practice this. But don't quit. At first a car horn and a dog bark will sound the same to you. But with practice that'll change.

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I can now tell a small dog from a big dog by sound. I can now identify who's voice I'm hearing. All this came from lots of practice. The key is to celebrate small achievements and not shortcomings.

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I'm telling you all this not to talk anyone into or out of it. But I am a cochlear implant recipient and this is my real experience.

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So don't let anyone but you persuade your decision. Listen to your doctors, friends and families opinions. But remember that unless they have one its just that. An opinion.

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If you or someone you know is making this decision. Feel free to contact me any time about it.

You're Done

Check out other guides by this author!

michigan
I'm a semi professional magician. Graphic designer. I've been deaf almost 20 years but i can hear now thanks to the cochlear implant I got almost 2 years ago.

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Annie Johnson

Thank you Ron. My Dad says that Brain gets furious with finger spelling but I have to start somewhere. I just moved to Washington from Idaho so hopefully there will be more options here. Happy New Year Ron.

Annie Johnson 5 months ago

Annie Johnson

I have worked in the court foe over 20 years and am astounded by the pay rate. Funny story, the defendant claimed he needed an interpreter so the trial was delayed till an interpreter was located. Well , while the victim was testifying the defendant yelled out ' you're lying b**ch ' before the interpreter had relayed what the victim said. Well the phonetic hearing impaired defendant committed a felony by pretending he couldn't hear. The jury was not happy with this. He was found guilty on all charges and got an extra 10 years for pretending he needed and interpreter and had to repay the interpreters fees. Turns out the reason he said he couldn't speak was the victim said he told her to be still and don't say anything and he would not kill her.

Annie Johnson 5 months ago

Ron Jaxon

Interpreters are really in demand and make good money. Some make hundreds an hour.

(author) 5 months ago

Ron Jaxon

The best way to learn asl is to spend time with deaf people that speak it. I know that's not always possible but it is the best way. Because you learn gradually and actually use it as you learn. Also look for classes at local community colleges. The first thing you should learn is how to finger spell. That way you can spell words you don't know the sign to yet. Learn with someone to practice. You have to learn to read as well as sign.

(author) 5 months ago

Annie Johnson

Ron, I think you are so wise. Can you suggest the easiest/comprehensive guide to ASL? My nephew ,both his parents are hearing impaired, didn't realize that ASL is actually consider knowing a second language and opens a whole new avenue of employment as a translator. My daughter signs fluently , my son who is hearing impaired refused to sign and reads lips. I want to communicate with my brother and his wife when I meet them. I was adopted and recently met my birth father would couldn't believe that I too have a hearing impaired son. Kudos to you Ron.

Annie Johnson 5 months ago

Ron Jaxon

Just a suggestion. There's a group called SHHH (Self Help for Hard of Hearing). See if there's one in your area. It's simply a group of people that meet and discuss issues of hearing loss. I'm just suggesting because just spending time with others that are going through the same thing can help. Or of course Facebook me and talk to me about it anytime. Ill help if I can.

(author) 5 months ago

Annie Johnson

Congrats Ron. I have epilepsy and I don't think of epilepsy as a Stop sign. I think of it as a detour sign . I wish there was something I could do to motivate my brother that he has capabilities. You keep on concuring the world Ron.

Annie Johnson 5 months ago

Ron Jaxon

Annie. I'm so glad it worked out for him. One of my favorite sayings is there's only one thing a deaf person can't do and that's they can't hear. While deaf I've performed on stage in front of hundreds. I know deaf singers, musicians, speakers, dancers, rappers and doctors. Just about anything. Check out a book called silent magic. I'm honored to be in it. The author is deaf and the smartest man I know.

(author) 5 months ago

Annie Johnson

Hi Ron, my son and brother are deaf. My son got part of his hearing when he was 5 and it was the worst decision I ever made . Now he has like arthritis in his ears and all sounds are irritating. My son went to traditional schools and graduated with 2 degrees from a prestigious university and is now training to be professional wrestlers. I am SO proud of him. My dad told my brother he could never succeed at anything and now he is 48 and never did anything .

Annie Johnson 6 months ago

Ron Jaxon

Sound comes to us from the outside world through the microphone. Which is about an inch above the ear canal. With the implant were only bypassing less the an inch of the outer ear to the inner ear. But sounds arrive at the same place that feeds it to our hearing nerve that leads to the brain for interpretation. I just want to express how inaccurate that misconception is.

(author) 7 months ago

Ron Jaxon

But the part of the inner ear that picks up sound and reaches the hearing nerve and sends it to the brain for interpretation as sound is exactly the same as normal hearing. We do not hear sounds "in our brain/head". We recieve sounds with our inner ear like normal hearing. The implant only intensifies the cochlea in the inner ear.

(author) 7 months ago

Ron Jaxon

@Heidi Feldman Thanks for the reply. You did express one common misconception though. Ive heard others say this but no one that has the cochlear implant ever will because its simply not true. We do hear with your ears with the cochlear implant. With a cochlear implant we do not hear from inside the brain/head as you described. Sound is picked up by the inner ear just like normal hearing. The cochlear implant has nothing to do with the brain. No part of the implant goes to the brain in any way. One part goes on the outside of the skull and a wire goes into the inner ear (not the brain). It goes to the inner ear and the inner ear is where everyone receives sound. Sound is picked up by the microphone behind the ear just like a hearing aid and is fed to the cochlea in the inner ear. So the only difference is sound isn't coming in through the ear canal (the same with a hearing aid).

(author) 7 months ago

Brible Offwanktax

I have synesthesia. After reading about the implant, I'm wondering if there are similarities when you first started hear?

Brible Offwanktax 7 months ago

Brible Offwanktax

Interesting and informative. I have never considered deaf culture before. Definitely given me some "food for thought".

Brible Offwanktax 7 months ago

Heidi Feldman

I honestly thought I was able to hear just like a hearing person. What threw me for a wild loop was the fact that Cochlear receiptants do NOT hear sounds IN THEIR EARS!!!! But instead hear all sounds from within the brain/head. That is truly discomforting to me... I cannot even conceptualise not being able to hear from the ear... It's hard for me to conceive the notion of CI users hearing sounds from their head. I'm so often told when people try my hearing aid, that it sounds like a microphone. I wonder what hearing people think Cochlear implants sound like. My speech is near perfect... Many people have no clue that I'm Deaf unless I'm not paying attention. Thanks for an excellent guide... You're spot on about our culture. Smile

Heidi Feldman 7 months ago

Heidi Feldman

Hi Ron... What a fantastic guide! As you already are aware, I'm profoundly Deaf. I particularly found your comment per practising identifying and differentiating between sounds, speech and whatnot will eventually sound "normal." I'm not a candidate for Cochlear Implants. It took me half a century to learn that I simply do not, and never will hear like a hearing person.

Heidi Feldman 7 months ago

Karen Larard

Dear Ron this guide is the most important guide on snapguide. Thank you for sharing and your words of wisdom.

Karen Larard 7 months ago

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